Event UPDATE!

YOU asked, and WE listened!!!

Ticketbae and Voice of Lupus are pleased to announce the extension of our registration period to sign up for VLF's Virtual 5K Race for Lupus to June 30th, 2021.

Voice of Lupus cannot deny the difficult and challenging times that we currently face. During this crucial time,  the future of VLF's Lupus Learning Resource Center relies heavily on the financial support we receive from this Virtual 5K.


Medals will be distributed at a date to be announced when the restrictions are lifted owing to the rampant spread of the coronavirus. We look forward to gathering with you for our prize distribution ceremony, but until then, let's continue to be safe. Our heartfelt thanks to all of you who have registered this far to Go that extra mile for people living with Lupus in Trinidad and Tobago through the Voice of Lupus Foundation.

Remember, there is US in LupUS

______________________________
Go That Extra Mile for people living with Lupus
 is a Virtual 5K Race hosted by the Voice of Lupus Foundation to commemorate Lupus Awareness Month in May. This fundraising initiative will help us get our Lupus Learning Resource Center off the ground and fully functional. The Lupus Center seeks to provide support for those living with Lupus in Trinidad and Tobago and those newly diagnosed. We provide counselling and educational resources to our patients.

We’ve all been through so much over the last year; we’re getting closer to a place where we can gather in person again, but we’re still not quite there. Our virtual 5K walk/race experience will keep us together safely while we are apart due to the coronavirus. 

Walk/Run wherever and whenever you like to raise funds (while maintaining a safe social distance), and virtually come together during the month of May to help us raise our voice for Lupus.

We're fundraising for the cause to make a difference!

You can help fund-raise for the cause once you register... Or just make a donation of any amount.


Date

18 Sep 2021 01:40 AM

Location

Any Where,
Any Time

Help Desk

Ticketbae Commitee ,
events@ticketbae.com
320-1603

Stay Connected

Become a supporter

$2450 raised of $25000 goal

Raised by 23 supporters


Who are we?

The Voice of Lupus Foundation is a registered NGO fiercely committed to improving the quality of lives for all people living with LUPUS in Trinidad and Tobago since 2011 through investing in initiatives that promote Advocacy, Awareness, Public Education and Support of Patients.  For over a decade, The VLF continues to provide support to those individuals who have been diagnosed with lupus, as well as their immediate families, friends and caregivers.

We are a network of more than FIVE MILLION people around the world who are living with lupus.

While lupus is a severe and life-changing autoimmune disease that can affect any organ in the body, we refuse to let lupus define us.

We are fighters - passionate and dedicated - who have chosen to join forces with our families, doctors, researchers, government leaders, and caring people like you to fight lupus.
We are warriors - determined to bring an end to the devastating impact of lupus. We will not quit until we secure a better quality of life for all people with lupus, their families, and future generations so that everyone can live well in a world without lupus.
To win this battle, more people in Trinidad and Tobago must join our fight. The first step begins with education. Knowledge is a powerful tool that can defeat lupus. Knowledge can help those who are looking for answers and provide support and hope to people who struggle with lupus every day.
Knowledge also can rally people to our cause. With knowledge, they can take actions to increase awareness, advocacy, raise money for our Lupus Learning Resource Center, and encourage government leaders to do everything they can to help people with lupus in Trinidad and Tobago.


What is Lupus?

Lupus is the Latin word for wolf. Lupus vulgaris, a severe facial rash rarely seen now, was once thought to resemble a wolf's bite.

Lupus is a chronic debilitating autoimmune disease where the body's immune system attacks its own self. The immune system is the part of the body that protects us against germs such as bacteria and viruses. In the normal individual, certain cells of the immune system make proteins called antibodies that react with foreign substances in the body and destroy them. In lupus, something goes wrong with the immune system so that it also makes antibodies that attack the person’s own tissues. The result is an autoimmune reaction which causes the inflammation that affects the specific tissues or organs in SLE.Lupus belongs in the family of autoimmune diseases which includes rheumatoid arthritis, multiple sclerosis, juvenile diabetes and scleroderma. 

The most common type of Lupus is Systemic Lupus Erythematosus commonly called (S.L.E.)

There are four main types of Lupus; they are: Systemic Lupus Erythematosus which affects all the organs in the body

                                                                                    Discoid Lupus Erythematosus (skin Lupus) and Subacute Cutaneous Lupus (SCLE) are diseases where skin rashes and sun sensitivity are the main problems; involvement of the internal parts of the body does not occur and life is not threatened. However, both DLE and SCLE may, at times, occur along with the systemic form of lupus. Performing appropriate tests to rule out systemic lupus erythematosus is therefore important when DLE or SCLE is newly diagnosed.

                                                                                    Drug Induced Lupus- is triggered by certain medications used to treat other conditions. Only a small number of people taking these drugs develop this form of lupus which has many of the symptoms of systemic lupus. These symptoms usually disappear once the person stops taking the medication.

                                                                                    Neonatal Lupus-is an uncommon form of lupus that affects the newborn child. This most often occurs in the children of women with SCLE or systemic lupus who also have a particular antibody (molecule that recognizes other molecules that are foreign to the body) in their bloodstream. Skin rashes that come and go and a decrease in some of the blood cells may occur but these problems go away within six months after birth. In rare cases, the tissues that control the normal heartbeat may be affected. However, this serious problem can often be corrected with a pacemaker.

No Credit Card?

For those who do not have access to a credit card, please note that you can still register by making a direct deposit via the Voice of Lupus Foundation's RBC bank account or through online banking.

Once you have successfully deposited the funds, be sure to send us a copy of the receipt via Whatsapp on our LUPUS HELPLINE number at 868-327-0220  or email us at voiceoflupus@gmail.com.

Once payment is confirmed, we will issue you a unique code directly from Ticketbae.

Here are  the details for our bank account:

Name on Account: The Voice of Lupus Foundation

Type of Account: Business Chequing Account

Account number: 110000001427337


Symptoms of Lupus

General statements about symptoms of lupus can be helpful, but each person’s experience will be very different. Some people will have only a few of the many possible symptoms. Because it can target any of the body’s tissues, lupus is often hard to pin down or diagnose. That’s why it is called “the disease with 1000 faces”.

Before symptoms specific to lupus occur, flu-like symptoms may appear, along with severe fatigue, a sudden unexplained loss or gain in weight, headaches, hair loss, hives, high blood pressure, or changes in the colour of fingers in the cold.

Any of the following may indicate to a doctor that lupus is present. A person with lupus may experience:

  • Joint pain, sometimes with swelling, redness and heat
  • A red rash across upper cheeks and bridge of the nose
  • Extreme fatigue
  • An unusual reaction to sunlight
  • A red scaly rash
  • Small, usually painless sores inside the nose or mouth
  • Chest pain, worse when lying down or inhaling
  • Swelling of feet and legs, weight gain
  • Seizures or severe psychological symptoms
  • Abnormalities in blood chemistry which show up in blood tests

This is far from a complete list of symptoms, and the diagnosis of lupus must be made by a doctor..

Raise funds for the The Voice of Lupus Foundation

Your donations will go towards the Month of Lupus Activities

Select the amount you would like to donate

Thank you to all supporters

Rueanna Haynes donated $100

on May 20, 2021

Nicholas Singh donated $10

on May 16, 2021

Anonymous donated $50

on May 11, 2021

Always supporting a cause
Diedrian Reece donated $100

on May 06, 2021

Karma Bing donated $120

on May 04, 2021

Jasmine donated $200

on May 03, 2021

Stay Strong all the Warriors!
Anonymous donated $100

on May 02, 2021

Lucil Luces-Richards donated $100

on April 30, 2021

VLF needs your support
Niranjanie Singh donated $100

on April 29, 2021

Niranjanie Singh donated $100

on April 29, 2021

Wesleyann Johnson donated $200

on April 29, 2021

Anonymous donated $100

on April 29, 2021

Donation on behalf of Susan Ollivierre
Anonymous donated $10

on April 24, 2021

Anonymous donated $10

on April 24, 2021

Anonymous donated $10

on April 24, 2021

Anonymous donated $10

on April 24, 2021

Afiya E donated $100

on April 17, 2021

Anonymous donated $500

on April 14, 2021

Hi Reanna I may not be able to do the actual virtual run so I am donating instead.
Shachia Tesha Strachan donated $100

on April 11, 2021

I support as a fellow warrior and we would fight through this!
Anonymous donated $200

on April 08, 2021

Nicolette Roy
Garth-Wayne Christopher donated $100

on April 08, 2021

Referred by Nicollette Roy.
Demion Richards donated $120

on April 08, 2021

Anonymous donated $10

on March 15, 2021

Goodluck!!
Registration Closed Submit Run
Date

18 Sep 2021 01:40 AM

Location

Any Where,
Any Time

Help Desk

Ticketbae Commitee events@ticketbae.com
320-1603

Stay Connected

Become a supporter  

$2450 raised of $25000 goal

Raised by 23 supporters